Prince Aiden's Kingdom!

Aiden's 2nd Birthday Party!

2009-02-15T23:36:00.013-06:00

Okay, I've finally got pictures from the party posted (not all of them, I didn't want to crash any computers!) Some are a little bit out of order because when you are getting picture from 4 people it's hard to keep them all straight.

My Handy Helpers, who did all the leg work for me since I was getting Capt Aiden ready for the party. And did ALOT painting the week of the party!

G-momma and Aunt Dana

G-momma directing the mates (aka Uncle Kaymon and Aunt Dana)

Hey, there's G-papa unbagging all the balloons!

Aunt Dana with Marla (who helped out too)

The cool little dud, ready to party!

His hat that he did not want to wear!

Aiden and his Mickey Pirate Crew

A Giant Card for everyone to sign

Another of G-papa getting out balloons

Our SMA Awareness Table

Food!

The Cakes (the pirate ship was for Aiden. The other was all the other Feb birthdays, which is almost the entire family).

Aiden and Chloe

Logan, Chloe and Aiden

The Princess Arriving (i know it's out of order!)

Smiling Logan!

Logan and Aiden

The Balloons for the release. Those cards on them all were different children affected by SMA.

Aiden's Pirate Loot

Some more of the kids. When they were diagnoised, we were all told the stats yet here are 3 kids thriving beyond the age of two! We know how lucky we are and alot of thanks goes to their wonderful pulmnologist, Dr. Makris. To borrow a line from another mom, our kids are now making history!

The Baloon release

Bye-bye, Princess Chloe! Aiden was inside sleeping so he didn't get to say bye-bye :O(

Dec 31st ---> Jan 31st 2009

2009-02-05T08:02:00.007-06:00

I have been working feverishly to get this site completely updated so that it will be ready for all of Aiden's birthday and party pics. So this is it! Hoepfully this weekend, I can get all the pics up from the big bash!

Aiden holding and manipulating his dinosaur

A very angry baby new year

Happy New Year!

Aiden sleeping through CPT

Mommy's Sleeping Prince

Playing with Flipper

Tummy Time

Aiden loves his Daddy!

My new favroite picture of Aiden

Aiden's new ride!!!

OOOHHH, A ceiling fan!

Leave me Alone!!

Aiden's christmas! (as narrated by Aiden!)

2009-01-22T16:31:00.010-06:00

Hi everyone, it's me Aiden! I'm gonna tell you all about my Christmas! Something has been going on for weeks. My mommy brought a tree into livingroom whoever heard of a tree in the livingroom? Then she starts putting all these boxes under it..hmmm...Then her and Daddy keep having conversations where they spell everything. Did no one tell them that I am only 23 months old and cannot spell?

So Christmas Eve (as mommy keeps calling it) I got dress in a 'special shirt' and family came over. It was my Papa Dav, MeMe Cindy, Aunt NayNay, Steve, Mike and My great grandmother Carolyn. I got alot of present but Mommy forgot to make more pictures. Later that afternoon, my nanny Linda came to see me.

The lights on the tree are so pretty.

Then Mommy told me that if I wanted good presents from Santa then we would have to leave him cookies, hence the cookies.

Here is how my stocking looked before I went to bed.

Someone ate the cookies, Santa must have came!

Is that Tyrone sticking out of my stocking????

Christmas morning!!! Just before Mommy woke me up, I had to do my morning routines before they'd let me at the presents!

Wow! Look at all the stuff Santa brought me!

I must have been a good boy (he must have looked a few incidents......)

Ooooohhh, A wubzzy!

My favorite gift of all....the airport!

My drum(it's switch adapted!)

M-I-C-K-E-Y M-O-U-S-E, It's the mickey mouse clubhouse...opps sorry I got sidetracked singing.

Looks it's the super sleuths.

And a dragon.....

Okay, now I am all dressed in yet another 'special shirt'. And it is time for more family. My G-momma and G-papa, Aunt NayNay (again) and Uncle Kaymon came and brought Mommy and Daddy breakfast. Then a little bit later Granny Jewel and Papa Roy came too.

G-momma and her girls

G-momma stealing sugars from me!

Mommy kept wanting a family photo but me and Daddy wouldn't look at the camera.

Here is all the stuff that was wrapped up under the tree from mommy and daddy.

Here is the stuff from Granny Jewel and Papa Roy

G-momma got me a pirate shit...argg... and gave mommy money for me.

Now, I will admit. I love toddles as much as any kid but don't be putting things on my head!

Nov 2008--->December 20th 2008

2008-12-21T16:40:00.004-06:00

Aiden sitting up for the first time in months (April was the last time, I think)

Elf Loose in the house

Secret Santa from SMA Support Gift Exchange...

Thanks Devin!

Opps, pics uploaded out of order!

Aiden and his Daddy

Aiden and his quilt from Cole's quilts

Oct 24th ----> Halloween

2008-12-05T08:38:00.008-06:00

Oct 24th Alabama/Tennessee Game

Aiden is divided between mommy/daddy factions

Oct 24th going to see Dr. Carter

Finally cold enough to where is knights and dragons outfit

Playing his switch adapted ghost

It's Halloween!!!!!

Aiden getting into pirate mode

ARGGGG!!!!!

His eye patch broke after like 3 mins....

Even Polly had an eye patch

Vent switch and Pumpkins

2008-10-30T08:33:00.004-05:00

On Oct 13th we were admitted to Children's to switch to LTV vent. We did it mainly because it has a backup battery system and the bipap does not. It works basically like his bipap. Aiden did great with the switch, he didn't even notice when we switch him to the other machine. We were afraid since he was so attached to his pappy.

Ready for my sleep study...boo!

The pumpkin Contest, we had an inhouse contest to see who could create the best pumpkin. This is Aiden with mine (the witch) and his (silly pumpkin with pablo hat). Scotty never would do his.

Pcitures 8/17-10/1/2008

2008-10-05T08:51:00.012-05:00

Okay, I know I am way behind again! I promise to do better!!!

Aiden snoozing on bipap, he just looked funny with his arm cocked up.

Playing with his computer the first time.

Princess Chloe's 2nd B-day Party

Labor Day
Hey Smokey
XOXO, Smokey

Yummy Flies (on my game)

Trying to sleep through breathing treatments.

My super long legs in my rocking star wars onsies

Ready for Bibb Graves Hall!

Go Lions!

(My mommy and G-momma are Alumni from UNA. Almost all Mommy's history classes were at Bibb Graves Hall.)

Teething isn't easy

Aiden scrunching his mouth like mommy

I'm a boy divided.

Me and Mommy in our Halloween shirts

(although daddy didn't take the pic where you could see that)

Happy Halloween!!

July 27th ----> August 15th

2008-08-17T08:41:00.007-05:00

Here are Aiden's newest pics. You can see him go from the American idol look. You know part standing up and part brushed over to what was supposed to be a high and tight but the clippers cut way shorter than I wanted with the largest blade.

aiden has gotten to where he thinks if he doesn't look at me when I have the camera out then it it not happening.

Playing with the lion I adapted (my first foray into adapting toys)

Ah, ebing attacked by wonder pets!

The new do

Aiden's new sign to commerate his love of dinos.

Aiden's new dinos. I'm gonna take them apart and see if we can adapt them

This is Aiden's leave me alone smile.

Swinging

Aiden and Snugglebunny quilt

In honor of the Olympics I made Aiden a gold metal for bubble blowing

Prince Aiden and his Princess

2008-07-28T07:47:00.005-05:00

Aiden Finally gets to meet Princess Chloe
It was so amazing to see Aiden with someone like him. Aiden and Chloe are so similar in their abilities. It was also great to finally get to meet Jenny. She has kept me sane though so many times.

Aiden and Chloe just held hands, tapping their fingers.

June 26th--->July 11th 2008

2008-07-25T14:21:00.009-05:00

All Right I promise this time I will do a better job at updating!

Some more of Aiden watching the Goldfish.

Stretching my arms!

Happy 4th of July!!!

My G-momma and G-papa
Oh, no! G-momma is gonna steal my piggy sugar

Gobble, Gobble!

G-momma has funny hair

Watching Daddy and the Fireworks
A little smile

Feeling my mommy's lips

Pablo's waching TV with me.

Bundled up after tubby time

Mid May til Father's Day

2008-06-29T23:54:00.006-05:00

I have been doing an atrocious job of keeping up this site with Aiden's pictures I swear I will do better!

ENJOY!!

Playing with his switch light

Coloring with his silky sticks!

Mom (G-momma) came out and was trying to entertain Aiden since he felt so bad from trying to cut teeth. He kept looking at her like she was insane!

Making Daddy a Father's Day Card

Happy Father's Daddy! You Rock! (See my shirt)

Getting rubbed down with my toothette

Pictures 5/4/08-5/14/08

2008-05-19T07:39:00.006-05:00

Silly boy playing wtih his lightup ball

The Birthday boy is 15 months old! YEA!!!

Swinging on his birthday!!

Showing off his intelligence
(Read the shirt)

Just woke up from nap, don't mind the wet shoulder.

Aiden is a champ at soaking though burp cloths, I think we go through about 10 a day.

All dressed up after getting home from the doctor. I didn't get a chance to trim the mohawk down before we went.

I finally got to cut his hair, and I cut it shorter than what I wanted. As I always say about my own after coloring diasters. It's hair it will grow.

Prettiest eyes in the South (...possiably the whole US...okay that WHOLE WORLD!)

April 15th-25th 2008

2008-05-10T09:07:00.005-05:00

Some pictures of Aiden from April.

We got him a swing to use with his tumbleform. He loves it, he likes watching the hooks that hold it up. He likes watching how things work. Very Anayltical.

(Oh, I don't look at the kitchen behind it, it is still torn apart from the redecorating, G-momma had to finish the semester before she could help me finish.)

Snoozing away on his bipap

A shirt to remind everyone that he is the handsomest Prince in the land!

Aiden's Tom Sawyer shirt from Miss Laura in Georgia. She's sweetheart that sends Aiden goodies.

Aiden not feeling to hot. Those allergies did a number on him.

Scotty trying to entertain a fussy Aiden

Doctor Aiden and the Haircut

2008-04-19T08:11:00.005-05:00

Aiden was a little junky last week and I was listening to his lungs (they were clear!) He thought it was the funniest thing ever. He was sleepy and being silly. So, I let him wear the stethoscope, I let him listen to my heart beat and he loved it. He was smiling and laughing!

Dr. Aiden

I decided it was time to control the hair. Aiden already had a mohawk, except it was starting to look like the Flock of Seagulls hairdo from the 80's. So, I trimmed it down to a controlled Mohawk.

The Finished Product!

Pictures from 3/28-4/4

2008-04-06T22:43:00.007-05:00

Aiden loves baseball!!! He would get all into the games last summer so we were eagerly anticipating this season. It doesn't help that Scotty and I are huge fans. Most women gripe about being sports widows. I love baseball and football so much I watch them while Scotty is at work.

He wore various baseball inspired clothes for the opening week of baseball!

Aiden will give me a #1 but he kept pulling his finger down as I snapped the epic!

Using his exercise band to stretch his shoulders

And to life his legs

Because of some anonymous donations were able to order Aiden several new plays pretties.
One is some switch adapted police light. He got a red, blue and green one. He hated them at first but now he likes them. Here is a video of him playing with the green one! It will look blurry and pixilated until it starts

EASTER 2008

2008-03-23T22:42:00.010-05:00

Happy EASTER

On Friday night G-momma, Aunt Dana, Uncle Kaymon and Granny Jewel came over to partake in coloring eggs with Aiden. Unfortunatly Aiden got very bored, very quick. So he went with his dad to watch March Maddness

Peter Cottontail herself
Aiden and his daddy
Scotty, Aiden and I

The Three Bunnies
G-Momma and her babies

Uncle Kaymon and Aiden

Easter Morning...

I keep telling Aiden that a 5 foot rabbit broke in and left him all kinds of stuff

Aiden's Very Special Egg

it was supposed to be red but it came out pink

Aiden and his loot

Aiden Easter Basket (I've named him Manny)
Aiden is not sure about the silly string

Getting kisses from Mommy
Me and Biggie boy
If I opened the egg Aiden could hold on to it and see himself in it

Random pics 3/18/-3/20

2008-03-22T10:05:00.004-05:00

Some pictures that were taken between 3/18-3/20.

I caught Aiden mid-yell!

I can't figure out it he is trying out the Flock of Seagull hairdo from the 80's or trying to be like Conan O'Brien!

Look at how long I've gotten!!!

Scotty had to work over about 3 hours, Aiden and I got bored. I was trying to give him bigtails like Chloe (his girlfriend) but they wouldn't stay up. So, he got a unitail!

Aiden's Strange legs in shorts

Aiden getting all into Wheel of Fortune (he loves Vanna, I told him she was older than his G-momma)

"Give'me a T."

Silly smiles!

Aiden's New Room!!!

2008-03-16T16:57:00.008-05:00

Prince Aiden's New Domain

Before

Day One

Day Two

The Dragon Border!

The Royal Biggie Boy had to wait for his room to be finished

Look at the mohawk he was sporting today!

The Finished Product!

My Tired Little Workers

The St. Patrick's Day Decorations that Aiden studies in the kitchen.

(Don't mind the ugly walls in there, that it the next room to get a makeover!!!)

Aiden's Equipment

2008-03-12T08:40:00.007-05:00

Here are some shots of Aiden equipment for those who are not familiar with all the machinery that goes with SMA!

I added a music player with some od Aiden's favorite songs to sing!! Enjoy!

His Bath Chair

Cough Assist--Aiden usually gets 6 sets of 5 twice a day, and if as needed if he is sick or gets junky

Stationary Suction in bedroom
Aiden's new head support (he'd rather watch TV)
His Tumbleform chair and Hessinger Collar
Feeding pump (with the amazing crib soother that plays rainforest sounds, if it died we wouldn't be able to get Aiden to bed at night. Since he is not longer in a crib that was the only place to put it. It is right at eye level now)

Portable suction and bipap (portable suction says in Livingroom when at home)
Pulse/Ox
Percussion wand
Concentrator (he has back up canister as well) Shows ambu bag attached

Newest Photos 2/29/08-3/2/08

2008-03-02T22:34:00.012-06:00

Aiden has been in such a good mood since getting over this last crud that he has been making some fabulous photos. Enjoy!

My newly modified bipap mask

Look at that smile!!

Seriously, Mommy enough with the camera

Aiden loves to hold onto my finger

The Shirt says it all!

Mommy, quit taking my picture!!!

Aiden was having an EMO hair night. Must be his Aunt NayNay rubbing off on him.

The shirt says "This is how I roll", Because that is my favorite saying!!

For those who keep up with Aiden CB journals, I mentioned his sudden adversion to tubby time. Here are some of the vile looks I get when trying to wash his hair.

Getting ready for St Patrick's Day!!!!

Says it all!

Hey, What's on the TV?

Random pics

2008-02-28T07:41:00.008-06:00

These are some random pictures of the prince taken between the end of Jan and now.

Showing off the guns!

His Wrist Grippy (I really need to think up a name for it, any suggestions???)

Van Gogh getting to hold a paint brush with his wrist grippy

G-Momma got his first painting as a birthday present!
Mommy's Valentine

Aiden's Sling system that papa David made him

The Barette incident.

Aiden has an out of control mokawk and Scotty will not let me cut it so i decided to use a barette to control it. Scotty came home from lunch and was not amused!

Aiden's Official Birthday!

2008-02-12T13:31:00.004-06:00

On Aiden's Official Birthday, Aiden's G-momma and Granny Jewel brought some fancy clothes for him to get his picture made in.

Granny Jewel made him a sailor's suit (the blue one) and the black and red was his Uncle Kaymon's outfit that he wore for his 1st birthday pictures!

his penny cake (The bakery made the ugliest cake ever, guess that is why it is a penny!)

Aiden's Party

2008-02-07T07:48:00.000-06:00

Prince Aiden's Party was Februrary 2nd, 2008. He was surrounded by friends and family!

And he got tons of cool stuff!

The Cake that the bakery messed up...it was supposed to be really cool.

The Royal Family

Aiden with his Papa David

Aiden and Nanny Linda

Prince Aiden and his Daddy

The Prince would rather watch TV....alas we bored him.

January 16th-23rd

2008-01-23T22:22:00.000-06:00

Aiden has a new friend a Valentine bear, I've names Hartly. He likes to watch TV with Aiden and he likes to help Aiden out by hold his bipap tube up so that it doesn't pull on his nose.

I managed to calm the mohawk!

Aiden and his new bath chair that papa Dave made him

Aiden and Santa, watching each other

It's Hartly!!

It takes a lot of concentration to watch Dora

Hartly likes to give kisses

Hartly helps out!

The photoshoot and watching the snow

2008-01-17T08:07:00.000-06:00

Our little Valentine

With his Celtic Knot Quilt

Deciding to kick back like a CK model

Watching the snow

My room!

2008-01-14T23:13:00.000-06:00

Aiden's Jungle

Look Monkeys!

My bed

January 2008 (through the 14th)

2008-01-14T08:36:00.001-06:00

Enjoying chest PT

Me and Daddy

Check out my rocking mohawk!

Aiden is always amazed by his fingers. If he is crying, you can pickup his hand where he can see and he will stop crying. Then he waggle his fingers and smile.

December 2007

2008-01-13T22:32:00.001-06:00

Waiting on Josh Ault from WAFF to come do my story

Yet another week long stay at Children's

Look at those huge brown eyes

Aiden with his new Hensinger collar

Prince Aiden's first CHRISTMAS!!!

This was Christmas Eve

In bed waiting for Santa

Christmas Day

Watching a Christmas Story that night

Sleeping after everyone left

My rocking new monster jammeis

NEW YEAR's EVE

My beads to ring in the new year!

November 2007

2008-01-13T17:56:00.001-06:00

G-Momma and Danny decided Aiden needed a Christmas Tree at the beginning of November.

GET THIS OFF OF ME!!!

Still mad that we dared to put antlers on his head.

Smiling with Daddy

His 9 Month Birthday

What do you want me to do?

Okay, I'll Smile

Another Month, another stay at Children's.

Rather watch TV than make pictures

Finally a smirk

Aiden's First Thanksgiving...gobble gobble

Sleeping between guests

Sitting up like a biggie boy

Ragging Daddy....War Eagle!

October 2007

2008-01-13T17:40:00.001-06:00

Ahh...October...Halloween...Nope, we got the extreme please of spending the last week of October and Aiden's First Halloween as guest of Children's hospital. We had went to see his surgeon to learn how to change out his g-tube. A couple of days prior he had fever spikes up to 101.5, but went away with Tylenol. He saw his pulmonologist and he decided that Aiden needed to be admitted. Possibly, pneumonia but never really sure. Also he got a gastric emptying test and was put on relgan and zantac. Because of the hospital stay and the fact that we were being "Aggressive" with his care. His hospice group dropped him, leaving us to figure out how to get all his equipment paid for by insurance.
But we managed just fine without them!

Aiden's 7 Month/Halloween Party

The Bundy's
Aiden RELAXING afer everyone left

Smiling for Mommy

"Okay back to the TV now."

Halloween in the hospital

A little kitty

September 2007

2008-01-13T12:04:00.000-06:00

Scotty was so excited for Aiden to watch his first Alabama game, but Aiden decided kickoff was really sleepy time.

Birmingham August 2007

2008-01-12T22:55:00.001-06:00

On August 28,2007 we had to go to Birmingham for Aiden to have a sleep study and have his feeding tube inserted. The sleep study was so that he could get the bipap. Insurence will not pay for it with out the study. The study was almost a $1,000. Seems like it would have been cheaper just to get the bipap.

This is Aiden hanging out in the hotel watching Madagascar!

Aiden and His G-Momma

All hooked up for the study

A little smile before they took him to surgery on the 29th.

In recovery, he looks so dazed!

Trying to give us a little smile the next day

Aiden and Danny

When we got to go home, Aiden was so happy. He smiled constantly. We had been in Birmingham for 6 days. G-Momma and I would ask "Are you ready to go home?" He would light up!

He finally gave up!

August 2007

2008-01-12T22:39:00.000-06:00

Aiden is showing his Vols Pride!!

Such a silly boy!

Aiden's 6 month Birthday party...a dinosaur theme

Hello???? John Adams???

Me and Biggie Rocking the backwards hat!

Checking on his daddy (that Nessie behind him)

July 2007

2008-01-12T13:03:00.000-06:00

July 10th is when we got the test result back confirming that Aiden had SMA.

Aiden with Templeton

Biggie Smiles!!!

Mommy Stop!!!

Aiden in the big tub for the first time

Silly boy!

Aiden is such a sleepy boy!!!

June 2007

2008-01-12T12:49:00.000-06:00

This was an extremely hard month. June 18th is when we went to Vanderbilt and Dr. Fenishcel told us that he thought that Aiden had SMA. He did not tell us much more than the name and that there was no cure. He let us come home and read all about. It was like getting punched in the stomach.

Aiden's First Food

Yummy!

Aiden is always so sweet when he is asleep, I had to get him up early to carry him for 4 month checkup with Dr. Carter, so I snapped a few shots.

Mommy, Stop it!

These were taken when we got home from Vanderbilt

May 2007

2008-01-12T12:33:00.000-06:00

This is about a month before Aiden's Doctor's realized there was a problem.

We thought he was developing normally, except he didn't want to lift his legs up.

Looking back now, we should have realized that Aiden was developing correctly.

He refused to spend any time on his tummy and could not lift his head when he was

but everyone reassured us that babies are slow to take to tummytime because

of the back to sleep program.

Just Me and the Lion
We took this picture to congratulate G~Momma in graduating from UNA.
GO LIONS!!!For some reason, Aiden thought sticking your tongue out at him
was the vilest thing ever! (now, he laughs at it)

Aiden and Pendleton

(He also has Templeton and Monty but they were elsewhere that day.)

I just thought it was funny to give dinos such absurd names.

Aiden used to be amazed when his hand would get covered.

He loved to stick them in his mouth.

BIGGIE Smiles

April 2007

2008-01-12T11:28:00.000-06:00

Hiya, Daddy!

Prince Aiden Sleeping

Aiden's First Easter!

His loot from the Easter Bunny
Those are some funny looking eggs!

Smiling for Mommy on Easter!

Oops, Gotta Sneeze

Aiden used to smile and laugh until he saw the camera and then he skeptical.

I'm pretneding to be Daddy!

He is flexing his muscles!

Playing dinosaur

Hmmm, quizzling...

Stretching to see the TV even at 2 months!

Gettting ready to stay with G~momma so Mommy and Daddy can go out!

March 2007

2008-01-11T23:02:00.000-06:00

Aiden was the best baby alive, he only cried when he was really upset. That was only at 3 o'clock in the morning. Our dog Roxy would sit and howl at my feet while I warmed a bottle in the middle of the night.

Aiden is one months old!

His "I will only sleep in my bouncy chair" phase

Mommy and Aiden

This is the first time I managed to get him to smile in a picture. He had started to smile about a week earlier but he always stopped when the camera flashed.

So, I started just snapping like crazy in hopes that I would capture one.

Hey. What's in there?

Mommy and the Prince

Daddy and the Prince

Another Biggie Smile

Okay, there is some that will say this is a horriable picture, but everyone and I mean everyone has that one really embarassing picture from their childhood.

Besides, it looks like he should be saying

"Wasssupppp?"

"Huh? His head is bald like mine."

February 2007

2008-01-11T15:06:00.000-06:00

February 2007

Sleeping with Daddy on the couch

Aiden's First Valentine's Day! (Alas the pretty little outfit I bought did not fit, so he wore a baseball uniform)
Aiden's First Visit to See Dr. Carter

No Photo's Please

He did NOT enjoy his first bath

Aiden could hold his head up when he first born, he lost the ability when he was able 6-7 months old.

Aiden had a few colicy weeks, this is when he earned the title

Prince Aiden, Lord of the Fussy Boys

Guardian of the Dirty Diapers

(It is the old English way of addressing peers, I'm weird like that)

Calling his G-momma for help!

Hospital and First Week Home

2008-01-11T13:15:00.000-06:00

Since I have been unsucessful in getting Aiden an SMA Angels site, I created this site so that everyone can see our little prince since birth (since is caringbridge will only hold 12 pics)
I will continue his updates on caringbridge!
This is my favorite picture of Aiden, he was a day old and already looked like a Thinker. Maybe he was pretending to be a historian like mommy!

The name of the blog comes the celtic meaning of Aiden, fire.

Scotty and Aiden

I like to call this one Ole!

Me and Aiden, my prince

Aiden was so mad about getting dressed, I am not sure if it is because I put him in a bear suit or because he knew he was going home with us and that terrified him!

Crashed after being up all night that first night home!

This one I like to call Baby Pope!

This was Aiden's first trip out of the house!