Aiden's Jungle
Look Monkeys!
My bed
Monday, January 14, 2008
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This is a pictorial journey through the life for our little Aiden, so that everyone can see what the true face of courage is. He smiles his way through adversity with the love of his family and friends! His story is one of hope and we can only hope his life will teach others the true meaning of love and compassion.
Prince Aiden Birthday Countdown!!!
Followers
About Me
- Aiden's mommy
- Russellville, Alabama
- Aiden suffers from a genetic disorder, Spinal Muscular Atrophy, Type 1. It is from a recessive gene that both parents have to carry. We had never heard of the disease that now rules every moment of our life. It effects the motor neurons from the spinal cord, especially voluntary muscles like arms, legs and neck. Aiden cannot move his arms or legs without assistance. He is still able to move his fingers to operate switch adapted items. He is still able to smile but that might not be possible one day. He cannot swallow, all his nutritional needs come from his G-tube. Respiratory care is a MUST! We are very proactive in keeping Aiden lungs clean and clear. For more information go to www.fsma.org
AH! Vistors!
Aiden 's Friends...etc
Aiden's Awesome Videos
G-momma's videos
Quotes that get me through the day::
“We are all in the gutter, but some of us are looking at the stars.” Oscar Wilde
“You may write me down in history
With your bitter, twisted lies,
You may trod me in the very dirt
But still, like dust, I'll rise.”
Maya Angelou
Were it not for hope the heart would break ~Scottish Proverb
There is only one pretty child in the world, and every mother has it. Chinese proverb
“I am so clever that sometimes I don't understand a single word of what I am saying.” Oscar Wilde
There is no telling how many miles you will have to run while chasing a dream. ~Author Unknown
"Great difficulties may be surmounted by patience and perseverance."-- Abigail Adams
"Patience and perseverance have a magical effect before which difficulties disappear and obstacles vanish." John Quincy Adams
May those who love us love us.
And those that don't love us,
May God turn their hearts.
And if He doesn't turn their hearts,
May he turn their ankles,
So we'll know them by their limping
~~Irish Proverb~~
“You may write me down in history
With your bitter, twisted lies,
You may trod me in the very dirt
But still, like dust, I'll rise.”
Maya Angelou
Were it not for hope the heart would break ~Scottish Proverb
There is only one pretty child in the world, and every mother has it. Chinese proverb
“I am so clever that sometimes I don't understand a single word of what I am saying.” Oscar Wilde
There is no telling how many miles you will have to run while chasing a dream. ~Author Unknown
"Great difficulties may be surmounted by patience and perseverance."-- Abigail Adams
"Patience and perseverance have a magical effect before which difficulties disappear and obstacles vanish." John Quincy Adams
May those who love us love us.
And those that don't love us,
May God turn their hearts.
And if He doesn't turn their hearts,
May he turn their ankles,
So we'll know them by their limping
~~Irish Proverb~~
Posts
Mine and Aiden's Songs
1 comments:
Awesome - thanks for putting these pictures up guys. :) We've figured out some ways to hold our SMA children and made a couple videos if you are interested. They're so precious to hold!! I wanted you to know that there is a new resource for SMA families called SMASpace. It is a networking site where you can store files, get a free email address, and meet other families. Check it out if you have a minute - www.smaspace.com.
Give Aiden some hugs from the Lee family!!
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